Voices Uncovered: Understanding Mental Health in Rare Diseases using Social Listening

Episode notes

In this episode, we tune into the unfiltered voices of patients and caregivers navigating life with rare conditions. Through the power of social listening, we uncover the hidden struggles around mental health—stories often left unsaid in clinics but shared openly online. Joined by Lauren Roberts from Rareminds, we explore what these conversations reveal, why they matter, and how they can reshape support for rare disease communities.